jedibrody2Brody is a happy, beautiful little boy with a big smile and a laugh that can bring sunshine to the darkest days. He loves trucks, trains, cars, and anything with wheels. He’s also a very affectionate son and brother who gives great hugs and big, messy kisses.

Brody was diagnosed with heart tumors through a routine ultrasound before his birth. The doctor told us they were likely caused by Tuberous Sclerosis Complex, a rare genetic condition that causes tumors to grow throughout the body and on vital organs including the brain, heart, and kidneys. Tuberous Sclerosis is the leading genetic cause of epilepsy and autism.

Brody has multiple brain tumors, and as a result, has suffered from epilepsy since he was two months old. Even so, we held on to the hope that he would be part of the 1/3 of children with Tuberous Sclerosis Complex who are mildly affected and developmentally normal. As the seizures progressed and he failed several medicines, we noticed more significant delays in his development. When he was one year old, we decided to put him on the waiting list at The Little Lighthouse so he could get more therapy and help.

In November 2013, Brody went through a two stage brain surgery to remove two of his tumors which were triggering seizures. The following month, I got the call that he would be starting The Little Lighthouse in January. It was the perfect timing because he was able to start school seizure-free and able to learn.

In the time Brody has been at the Little Lighthouse, he has increased significantly in his vocalization and learned to drink through a straw. What has made me most happy is seeing how much his teacher and the other children love him. I can’t wait to see the improvements he makes in the future.